Genetic counselors and the fight for medicare recognition

Medium |
May 2020
G2P Blog

Elizabeth Fieg, MS, LCGC discusses the importance and implication of the H.R. 3235-The Access to Genetic Counselor Service Act that would authorize and recognize appropriately credentialed genetic counselors as reimbursable providers under Medicare.

FDA stepping up actions against PGx testing, forcing some labs to stop reporting drug information

Genome Web |
August 2019
Press

Researchers led by Robert Green at Brigham and Women’s Hospital looked at whether consumers getting direct-to-consumer genetic testing were using PGx tests to change treatment decisions. Although this study relied on self-reported data from participants, it suggests that less than 1 percent could have made unsupervised medication changes based on their genetic test results.

G2P Newsletter June 2019

June 2019
G2P News

G2P’s summer began with our team members participating in the Boston Athletic Association 10K on Sunday June 23rd! Over the past few months, G2P faculty have attended numerous conferences nationwide, been featured in podcasts discussing the new preventive genomics clinic, and engaged with leaders in science, business, and industry in support of the Franca Fund.

Decoding FDA DTC policy

SOUNDROCKET |
November 2018
G2P Blog

Scott D. Crawford, Shawn Fayer, and Robert C. Green directly address and highlight some of the recent FDA movement in the direct-to-consumer (DTC) genetic testing space with a five-post blog compilation.

My ancestry test revealed a genetic bombshell

New York Post |
August 2018
Press

Ancestry tests have “blown up family secrets all over the country”, but is it really helping people for the better to know this information? Read about Dr. Robert Green’s opinions on genomic testing revealing unsuspected familial matters.

Results of at home genetic tests for health can be hard to interpret

National Public Radio |
June 2018
Press

Rita Steyn, who has a family history of cancer, decided to order a home genetic testing kit to look for certain genetic mutations that might increase her risk for the disease. While this is something many people are doing, consulting a physician is still recommended in order to understand the real risks, and what the … Continued

Privacy and consumer genetic testing don’t always mix

ScienceNews |
June 2018
Press

For a few hundred dollars and a spit sample, you too could take a journey of genetic self-discovery. You may learn some things, but what are you giving away? Before you spit, it helps to know what you’re getting into.

Will your baby like cilantro? These genetic tests say they can tell you

Wired |
January 2018
Press

BabyGlimpse uses DNA from each parent to predict how their future child might look. It is one of the newest versions of direct-to-consumer testing, where patients get direct access to either their or their children’s genetic code. Dr. Robert Green shares his thoughts on the matter.

Protecting patients from genetic discrimination

The Scientist |
March 2017
Press

“GINA was intended to reassure people so that they would be able to get genetic testing and would be able to participate in genetic research, and many people are now getting tested and participating, so to some extent it was helpful,” Green told The Scientist.

HIPAA turns 20: Five things you should know about your medical records

STAT |
August 2016
Press

Patient information and participation help advance medical research. However, the issue is that this private information can be shared with insurance companies. Therefore, many have been reluctant to participate in genetic research trials, listing privacy as a reason for not joining or continuing a study.

Genomes2People: a roadmap for genomic medicine

Front Line Genomics |
May 2016
Press

An overview and summary of the main projects that are being conducted within the G2P program, both past and present. This article also includes the progract managers and research assistants on each major project.

23andMe CEO: I’ll sleep when we bring our full test back to market

Fast Company |
March 2016
Press

In November 2013, the FDA publicly ordered 23andMe to cease sales. A few years later, 23andMe rebranded to offer only some health reports along with ancestry and genealogy reports, without the serious health indicators it initially had in mind. The company is working its way back to providing medical information.

If you want life insurance, think twice before getting a genetic test

Fast Company |
February 2016
Press

With the passing of the Genetic Information Nondiscrimination Act, the federal government has barred health insurance companies from denying coverage for those who have a genetic mutation. However, it does not cross over into private insurance companies, which can ask about genetic history and information.