We have assembled a Genomics & Life Insurance Working Group of experts to explore themes, challenges and benefits of educating life insurers about genetic and genomics concepts. We would like to help them better understand how genetic and genomic testing can ultimately prolong individuals’ lives, resulting in a net benefit for patients and their life insurers.
The group consists of individuals from academia and industry who have a deep interest in how the growing field of genomics will affect the life insurance industry and how the two might come together successfully. With the help of worldwide leaders from a variety of related fields, we are rigorously exploring issues such as privacy, whether insurers should have access to their clients’ genetic test results, how insurers might use genetic information to determine coverage, and the financial needs of the insurance industry for continued success. Our goal is to understand the perspectives of stakeholders in this era and to develop systems to overcome challenges.
Our goal is to understand the perspectives at stake in this era of genomics and to develop systems to overcome these and other relevant challenges.
Members of the Genomics and Life Insurance Working Group:
- Edward Baird, Former Insurance Executive
- Carrie Blout, MS, CGC, Senior Genetic Counselor at Brigham and Women’s Hospital
- Glenn Cohen, JD, James A. Attwood and Leslie Williams Professor of Law and Faculty Director, Petrie-Flom Center for Health Law Policy, Biotechnology & Bioethics at Harvard Law School
- Robert C. Green, MD, MPH, Professor of Medicine at Harvard Medical School
- Anya Prince, JD, MPP, Associate Professor of Law at University of Iowa
- Mark Rothstein, JD, Founding Director of the Institute for Bioethics, Health Policy and Law at the University of Louisville School of Medicine
- Effy Vayena, PhD, Director of Health Ethics and Policy Lab in the Department of Public Health at the EBPI, University of Zurich
- Yann Joly, PhD, FCAHS, Ad.E., Research Director of the Centre of Genomics and Policies (CGP) and Associate Professor at the Faculty of Medicine, Department of Human Genetics at McGill University