“When researchers discover something about a participant that could significantly affect that person’s relatives, do the researchers have a duty to tell the relatives? Are the researchers bound to protect the participant’s privacy even if the participant is deceased?”
With the cost of sequencing your genome going down by thousands of dollars, one man was able to combat his chronic pain by having his genome sequenced. But does having that knowledge always mean a better outcome?
A family who participated in the BabySeq project at Brigham and Women’s is for genetic testing, as they wanted to be prepared, even if the test came back to show that their child would develop a life altering disease.
An overview and summary of the main projects that are being conducted within the G2P program, both past and present. This article also includes the progract managers and research assistants on each major project.